Achieving justice in genomic translation
Work detail
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.
Overview
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Contributors
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- Open Author
Kelly A. Edwards
- Open Author
Susan Brown Trinidad
- Open Author
Wylie Burke
- Open Author
Sara Goering
- Open Author
Suzanne Holland
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Achieving justice in genomic translation
- AJAchieving Justice in Genomic Tr...Wylie Burke, Kelly A. Edwards
Achieving Justice in Genomic Translation
- AJAchieving Justice in Genomic Tr...Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad
Achieving Justice in Genomic Translation